We cannot legally make recommendations on doctors. You may be able to find good current recommendations by joining some of the Groups and asking around.

**** These lists have not been verified by FDRS. All info is best verified through internet searches before calling as some may have relocated or retired. These physicians may be either aware of or sympathetic to patients with fat disorders and may possibly help treat it and/or diagnose it but may not be a specialist in the disease itself. ****

 

If you are aware of good doctors, please Contact Us.

 

IF YOU ARE A PHYSICIAN INTERESTED IN LEARNING MORE OR BEING ADDED HERE, please Contact Us.

Dercum's US

Dercum's International

Lipedema US

Lipedema International

Madelung's

FML

 

Dercum’s Disease Medical Providers/Physicians

ALABAMA
None

ALASKA
Dr. John H. Bocachica Dermatologist of the Alaska Native Medical Center, Anchorage, Alaska

ARIZONA
Dr. Mark Luba, Phoenix, AZ
Dr. Karen Herbst Endocrinologist. Specializes in Fat Disorders/ Dercums Disease/Lipedema, Tucson, AZ

ARKANSAS
None

CALIFORNIA
Dr. T. Berger, UC San Francisco
Dr. Kevin Degnan (Plastic/ Reconstructive Surgeon), Concord, CA
Dr. Dye, UCLA Dermatology, Los Angeles, CA
Dr. Van Herle, Endocrinologist, UCLA, Los Angeles, CA
Dr. Secor (ortho) and Dr. Clark (derm) near Seal Beach, CA
Dr. Huynh (Kaiser Permanente)  near Elk Grove, CA
Dr. Gregory Enns, Medical Geneticist at Stanford University Hospital CA
Dr. Walter Yourchek (Dermatologist) Stockton, CA
Dr. Elliott and Doctor Fiorentino are at Stanford Hospital in Palo Alto, CA
Dr. Amy Solomon, Western Medical Clinic, Boulder Creek, CA

COLORADO
Dr. Adam Palazzari, is very open to learn more and has consulted with Dr. Herbst when needed, Lafayette, CO

CONNECTICUT
None

DELAWARE
None

FLORIDA
Dr. Hussamy, Vero Beach, FL
Dr. Fisher, Dermatologist at WFL Medical Center, Pensacola, FL
Dr. Tara Huguenin MD Rheumatologist, Sarasota, FL or Englewood, FL - a patient was told ~ 9/2015 that this physician "doesn't do anything with DD"
Dr. Jerome Vincente MD  115 JFK Drive Atlantis, Fl (palm beach county)   561-967-2200

GEORGIA
Dr. Jack Arbiser, Emory Clinic, Atlanta, GA
Rebecca Campen, Savannah, GA

HAWAII
None

IDAHO
Dr. Lindsay Sewell. He is a dermatologist in Idaho Falls, Idaho

ILLINOIS
Dr. Leah Durst at the University of Chicago Medical Center
Dr. Jason Gruss, MD (Pain & Rehab doc, familiar with DD) http://firsthealthassociates.com/departments-providers/physical-medicine/jason-j.-gruss--md.html

INDIANA
None

IOWA

KANSAS
Dr. H. Lindsley, Kansas University Medical Center Kansas City, KS

KENTUCKY
Dr. Gordon B. Newell, Dermatologist, Bowling Green, KY
S. L. Cook, MD/Surgeon, Somerset, KY

John Alley, A surgeon who removes tumors . He is at KU Medical Center in Kansas City, Kansas.

LOUISIANA
Dr Kevin Ingram Vidalia, LA
Dr. Cavell  Monroe, LA

MAINE
None

MARYLAND
None

MASSACHUSETTS
MASSACHUSETTS GENERAL HOSPITAL
Dermatology: Dr. Rebecca Campen and her associates (Dr. Campen may be in GA now)
Campen, Rebecca B, MD Diagnoses Dercums Disease, MA
Dr. Angel Dermatologist Surgeon- removal of lipomas, MA
Dr Bruce Watrous, Reading, MA
Dr. Kimball at Mass. General in MA
The Pain and Wellness Center/ treats pain caused by Dercums Disease Dr. Viasman  Peabody, MA
Mystic Valley Dermatology Dr. Michael J. Yablonsky Medford, MA
Dr. Robert Pastan Rheumatologist/Internal Medicine Stoneham, MA

MICHIGAN
Dr. Fivenson, Dermatologist  MI
Dr. Ali Moiin,MD Dermatologist at the Detroit Medical Center, Detroit, MI
University of Michigan - Dr. Christine Holland  immunologist

MINNESOTA                
Dr. Andrews, Physiatry in Fergus Falls, MN
Dr. Bruce Money, Lake Region Healthcare, Fergus Falls, MN

MISSISSIPPI
None

MISSOURI
Dr. Aunita Hill at Missouri Baptist Hospital in St. Louis, MO
Virginia Robine, MO

Robin West. Blue Springs or Independence, MO
http://barrypointefamilycare.com/our-providers/dana-h-granberg-md

MONTANA
None

NEBRASKA
Dr. Hurley, Rheumatology Clinic, Omaha Nebraska Veterans Hospital, Omaha, NE

NEW HAMPSHIRE
None

NEVADA
None

NEW JERSEY
SUMMIT MEDICAL GROUP Berkeley Heights, NJ
Plastic Surgeon: Dr. Reza Moneni, NJ
Rheumatologist: Dr. Hendricks Whitman 111, NJ
Pain Specialist: Dr. Oza, NJ
Orthopedic: Dr. Mirsky, NJ
These Doctors work in harmony with each other and with Dr. Herbst

NEW MEXICO
None

NEW YORK
Dr. E. Gosy & Dr. J. Keyes  Eden, NY
Dr. Alcena White Plains, NY
Dr. Hratch Karamanoukian, MD  Vein Specialist in Buffalo, NY

NORTH CAROLINA
Dr. Henry Lepore. Brunswick County, Sunset Beach, NC
Shelly and she is located at West Point Medical Practice in Lenoir, NC.
Dr. Hicks PCP, Thomasville, NC

OHIO
Dr. Bob Singh, Marion, OH
Dr. Andrew Kowalewsky, OH
Dr. Kevin V. Hackshaw Rheumatologist Columbus, OH
                 
OKLAHOMA
Dr. Michael Elliot Internal Medicine doctor Guthrie, OK

OREGON
Dr. Ben Cockcroft MD, diagnosed and treated; Seaside, OR
Legacy Emanuel Hospital and Health Center and Good Samaritan Hospital and Health Center  treat pain for DD Dr. Jennifer Gibson; Portland, OR

PENNSYLVANIA
Dr David Adams at Geisinger Medical Center, dermatological surgeon, Danville, PA

Dr Vincent Herbst, dermatological surgeon, Williamsport, PA
Dr. Robert A. Centrone, D.O., Internal Medicine, Drexel Hill, PA

RHODE ISLAND
None

SOUTH CAROLINA
None

SOUTH DAKOTA
None

TENNESSEE
Dr. J. Kevin Buchanan Farragut Family Practice in Knoxville, TN
Dr. Jeffrey Byers, Vanderbilt Clinic in 615-791-7254,  Nashville, TN
Dr. Shack, Director of Plastic Surgery 615-322-2350, Vanderbilt Nashville, TN
Dr. James Gore, Rheumatology 615-764-4450, Vanderbilt Nashville, TN

TEXAS
Dr. W.C. Anderson, III MD; dermatologist, New Braunfels, Texas -- As of 07/28/16, a patient reported that this physician/therapist is not seeing new patients
Dr. Martin Fischer, Rheumatologist, Houston, TX
Dr. Kanani Forney, Texas
Dr. Santamaria in Tomball, Texas
Dr. Caroline Fife at the Texas Med Ctr http://mhhs.woundcenter.net/fife_cv.htm Houston, TX

UTAH
None

VERMONT
Bonita Libman, Burlington, VT

VIRGINIA
Dermatologist Dr Pariser in Norfolk,VA

WASHINGTON
Dr. Christopher Berlin, Group Health, Downtown Seattle, WA

WEST VIRGINIA
None

WISCONSIN
Dr. Elizabeth Bensen, Physiatrist (Pain & Rehab) Fond Du Lac, WI

WYOMING
None

INTERNATIONAL DERCUM'S

Canada
Dr. Scott Walsh of Sunnybrook Hospital, Ontario, Canada
Dr. Pierre Lebel, Montreal, Canada

Europe
Dr. White, breast surgeon &  Dr. Adams, plastic surgeon, in London, England

Ms. Ackroyd, cardiovascular consultant at Princess Alexandra Hospital, Harlow Essex UK
Dr A Warin of The Royal Devon & Exeter Hospital Exeter UK
Dr Skilton consultant surgeon of North Staffs, then Dr Daggett Consultant Physician at Stafford General Hospital  UK?
Dr. Sven Söderberg, Luleå-Sweden
Professor Mortimer at Parkside Hospital in Wimbledon. London UK
Dr. Ulrike Meske, Pain Therapist Lörrach, Germany

Denmark

According to official information from The Danish Health and Medicines Authority, these are the hospitals who diagnose and treat DD in Denmark (it might be necessary to explain that to your GP who has to make the referral): Department of Dermatology at Bispebjerg Hospital, Copenhagen or the dermatology departments at the Danish university hospitals.

Australia
Dr. T. Gavaghan Canberra Australia
Dr. Peter Randell, Perth, Western Australia
Dr. Paul Flanigan, Surgeon Geraldton, Western Australia
Redcliffe Hospital Redcliffe Australia

Dr. Ian Holten plastic surgeon Geelong Victoria

Dr. Robert Parkes Launceston Tasmania

Dr. Bianca Perera Launceston Tasmania

Dr. Amanda Young surgeon Launceston Tasmania


 

US LIPEDEMA

Please note that Liposuction surgeons can be found on our Liposuction surgery page:  Click here

 

Country:  United States

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment

___________________

State:  California

Clinician’s Name: Dr. Emily Iker Type of clinician:  M.D.
Location: Santa Monica, Lymphedema Center  2021 Santa Monica Blvd Suite 620E
Santa Monica, CA 90404
Contact Info: Phone:  310-829-7472  Web:  http://www.lymphedemacenter.com
Services offered:  Diagnosis and treatment

___________________

State:  Florida

Clinician’s Name: Dr. Margarita Correa​ Type of clinician:  M.D.
Location:Physical Medicine and Rehabilitation, Pediatric Rehabilitation Medicine, ​Pain Medicine   3 locations:  621 WILKINSON ST ORLANDO, FLORIDA 32803 // ​720 ALMOND ST CLERMONT, FL 34711// 1198 CYPRESS GLEN CIRCLE KISSIMMEE, FL 34741 
Contact Info: Phone: Orlando (407) 237-0069  Clermont (352) 404-6959   Hunters Creek (407) 237-0069     www.physmedi.com​
Services offered:  Electromyography / Nerve Conduction Studies, Musculoskeletal Disorders, Work / Occupational Related Injuries, Auto Accident Injuries, Pain Disorders, Sports Medicine, Neurological Disorders, Hand Conditions, Pediatric Rehabilitation, Lymphedema / Lipedema Management, Rheumatologic / Arthritic Disorders
___________________

State:  Missouri

Clinician’s Name: Dr. Thomas Wright  Type of clinician:  M.D.
Location:3449 Pheasant Meadow Dr, MO 63368 13449 Olive Blvd, Chesterfield, MO 63017 
Contact Info: Phone: 636-397-4012  
Services offered:  Vascular Ultrasound , Order and interpret Lymphoscintograms, Therapy, Compression, Pumps, Diet and Exercise

___________________

State:  Nevada

Clinician’s Name:  Dr. Eddy H. Luh Type of clinician:  M.D.
Location: Las Vegas Surgical Associates, LLP 8930 West Sunset Road Las Vegas NV, 89148 
Contact Info: Phone:  702-228-8834, 702-258-7788  Web:  http://www.lvsurgical.com
Services offered:  He is a vascular surgeon familiar with lip. He doesn't do the surgery but he can recommend it.

___________________

State:  New Jersey

Clinician’s Name: Dr. Kathleen Francis Type of clinician:  P.C.
Location:  Livingston, NJ
Contact Info:  Phone:  973-322-7366
Services offered:  Evaluation, management, and treatment of lymphedema & Lipedema.

___________________

State:  New York

Clinician’s Name: Dr. Cluny Lefevre   Type of clinician:  Family Medicine, DO
Location: Montefiore Medical Center, New York
Contact Info: Phone: (212) 740-4600  Fax: (212) 740-4604   http://www.montefiore.org/body.cfm?id=1735&action=detail&ref=2824
Services offered:  Diagnostic Testing for Lipedema 

___________________

State:  Oregon

Clinician’s Name: Dr Jonathan Purnell Type of clinician:  Endocrinologist 
Location: Portland Oregon  Oregon Health Sciences University
Contact Info: Phone:  503-494-3273  Web:  http://www.ohsu.edu/academic/medicine/divisions/endo/purnell.htm
Services offered:  Diagnosis

___________________

State:  Pennsylvania

Clinician’s Name: Dr. Peter Prociuk Type of clinician:  MD
Location: 322 North High Street
West Chester, PA 19380,
Contact Info: Phone: 610-701-5702    Fax:  610-701-4225  http://www.drpeterprociuk.com
Services offered:  monitoring and prescribing to help maintain lipedema patients to be as healthy as possible.  He understands Lipedema very well. His approach is to interview the patient, order alcat tests to see what foods are inflaming, prescribe diet recommendations, and order organic acid tests to see what supplements the patient needs in her particular case. He also writes prescriptions for support hose, physical therapy and flexi touch machine. He prescribes homeopathic remedies in order to help the patients overall health ..including mental health. 

___________________

INTERNATIONAL LIPEDEMA

Country:  UK

City:  Stockton on Tees

Clinician’s Name: Pam de Chaumont Rambert at Dales Therapy Type of clinician:  MLD Therapist
Location:  31 White House Croft, Long Newton.  TS21 1PJ
Contact Info: 01642 583530 This email address is being protected from spambots. You need JavaScript enabled to view it. .uk
Services offered:  Manual Lymph Drainage, Decongestive Lymphatic Therapy, Deep Oscillation, Kinesio-taping, Aromatherapy, Bowen, Low-Level Laser Therapy

 

Country:  Taiwan

City: Hsinchu City

Clinician’s Name: Chen-Hsiang Kuan Type of clinician: Plastic Surgery
Location: No. 25 Ln 442  Sec 1  Jungguo rd  Hsinchu City 300 Taiwan
Contact Info: 886-3-5326151 ext 8394    
Services offered:  Liposuction

___________________

 

MADELUNG's

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment

___________________

FML

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment