We cannot legally make recommendations on doctors. You may be able to find good current recommendations by joining some of the Groups and asking around.

These lists have not been verified by FDRS. All info is best verified through internet searches before calling as some may have relocated or retired. These physicians are either aware of or sympathetic to patients with fat disorders and may possibly help treat it and/or diagnose it but may not be a specialist in the disease itself.

If you are aware of good doctors, please Contact Us.

 

IF YOU ARE A PHYSICIAN INTERESTED IN LEARNING MORE OR BEING ADDED HERE, please Contact Us.

Dercum's US

Dercum's International

Lipedema US

Lipedema International

Madelung's

FML

 

Dercum’s Disease Medical Providers/Physicians

ALABAMA
None

ALASKA
Dr. John H. Bocachica Dermatologist of the Alaska Native Medical Center, Anchorage, Alaska

ARIZONA
Dr. Mark Luba, Phoenix, AZ
Dr. Karen Herbst Endocrinologist. Specializes in Fat Disorders/ Dercums Disease/Lipedema, Tucson, AZ

ARKANSAS
None

CALIFORNIA
Dr. T. Berger, UC San Francisco
Dr. Kevin Degnan (Plastic/ Reconstructive Surgeon), Concord, CA
Dr. Dye, UCLA Dermatology, Los Angeles, CA
Dr. Van Herle, Endocrinologist, UCLA, Los Angeles, CA
Dr. Secor (ortho) and Dr. Clark (derm) near Seal Beach, CA
Dr. Huynh (Kaiser Permanente)  near Elk Grove, CA
Dr. Gregory Enns, Medical Geneticist at Stanford University Hospital CA
Dr. Walter Yourchek (Dermatologist) Stockton, CA
Dr. Elliott and Doctor Fiorentino are at Stanford Hospital in Palo Alto, CA

COLORADO
Dr. Adam Palazzari, is very open to learn more and has consulted with Dr. Herbst when needed, Lafayette, CO
Dr. A Solomon, Western Medical Clinic, Boulder Creek, CO

CONNECTICUT
None

DELAWARE
None

FLORIDA
Dr. Hussamy, Vero Beach, FL
Dr. Fisher, Dermatologist at WFL Medical Center, Pensacola, FL
Dr. Tara Huguenin MD Rheumatologist, Sarasota, FL or Englewood, FL
Dr. Jerome Vincente MD  115 JFK Drive Atlantis, Fl (palm beach county)   561-967-2200

GEORGIA
Dr. Jack Arbiser, Emory Clinic, Atlanta, GA
Rebecca Campen, Savannah, GA

HAWAII
None

IDAHO
Dr. Lindsay Sewell. He is a dermatologist in Idaho Falls, Idaho

ILLINOIS
Dr. Leah Durst at the University of Chicago Medical Center
Jason Gruss, MD (Pain & Rehab doc, familiar with DD) http://firsthealthassociates.com/departments-providers/physical-medicine/jason-j.-gruss--md.html

INDIANA
None

IOWA
MERCY PHYSICAL REHABILITATION AND PAIN SERVICES: treat pain for DD Dr. Jennifer Gibson Mason, City, IA

KANSAS
Dr. H. Lindsley, Kansas University Medical Center Kansas City, KS

KENTUCKY
Dr. Gordon B. Newell, Dermatologist, Bowling Green, KY
S. L. Cook, MD/Surgeon, Somerset, KY

John Alley, A surgeon who removes tumors . He is at KU Medical Center in Kansas City, Kansas.

LOUISIANA
Dr Kevin Ingram Vidalia, LA
Dr. Cavell  Monroe, LA

MAINE
None

MARYLAND
None

MASSACHUSETTS
MASSACHUSETTS GENERAL HOSPITAL
Dermatology: Dr. Rebecca Campen and her associates (Dr. Campen may be in GA now)
Campen, Rebecca B, MD Diagnoses Dercums Disease, MA
Dr. Angel Dermatologist Surgeon- removal of lipomas, MA
Dr Bruce Warous, Reading, MA
Dr. Kimball at Mass. General in MA
The Pain and Wellness Center/ treats pain caused by Dercums Disease Dr. Viasman  Peabody, MA
Mystic Valley Dermatology Dr. Michael J. Yablonsky Medford, MA
Dr. Robert Pastan Rheumatologist/Internal Medicine Stoneham, MA

MICHIGAN
Dr. Fivenson, Dermatologist  MI
Dr. Ali Moiin,MD Dermatologist at the Detroit Medical Center, Detroit, MI
University of Michigan - Dr. Christine Holland  immunologist

MINNESOTA                  

Essentia Health Clinic. Some see Heidi Olsen-Fitzgerald, PA. But her willingness to educate her colleagues has led to two more providers in the same clinic. Dr. Lara Lunde and Dr. Rogers. Moorhead, MN
For PT and MLD there is Becky Dockter at OSPTI in Breckenridge, MN
Dr. Andrews, Physiatry in Fergus Falls, MN

MISSISSIPPI
None

MISSOURI
Dr. Aunita Hill at Missouri Baptist Hospital in St. Louis, MO
Virginia Robine, MO

Robin West. Blue Springs or Independence, MO
http://barrypointefamilycare.com/our-providers/dana-h-granberg-md

MONTANA
None

NEBRASKA
Dr. Hurley, Rheumatology Clinic, Omaha Nebraska Veterans Hospital, Omaha, NE

NEW HAMPSHIRE
None

NEVADA
None

NEW JERSEY
SUMMIT MEDICAL GROUP Berkeley Heights, NJ
Plastic Surgeon: Dr. Reza Moneni, NJ
Rheumatologist: Dr. Hendricks Whitman 111, NJ
Pain Specialist: Dr. Oza, NJ
Neurologist: Dr. Cohen, NJ
Orthopedic: Dr. Mirsky, NJ
These Doctors work in harmony with each other and with Dr. Herbst

NEW MEXICO
None

NEW YORK
Dr. E. Gosy & Dr. J. Keyes  Eden, NY
Dr. Alcena White Plains, NY
Dr. Kevin Kulick, dermatologist, in Buffalo, NY

NORTH CAROLINA
Dr. Henry Lepore. Brunswick County, Sunset Beach, NC
Shelly and she is located at West Point Medical Practice in Lenoir, NC.
Dr. Hicks PCP, Thomasville, NC

NORTH DAKOTA
For OT and MLD there is Gabe Evenson at Blue Water Therapy in Fargo, ND

OHIO
Dr. Bob Singh, Marion, OH
Dr. Andrew Kowalewsky, OH
Dr. Kevin V. Hackshaw Rheumatologist Columbus, OH
                 
OKLAHOMA
Dr. Michael Elliot Internal Medicine doctor Guthrie, OK

OREGON
Dr. Ben Cockcroft MD, diagnosed and treated; Seaside, OR

PENNSYLVANIA
Dr David Adams at Geisinger Medical Center, dermatological surgeon, Danville, PA

Dr Vincent Herbst, dermatological surgeon, Williamsport, PA
Dr. Robert A. Centrone, D.O., Internal Medicine, Drexel Hill, PA

RHODE ISLAND
None

SOUTH CAROLINA
None

SOUTH DAKOTA
None

TENNESSEE
Dr. J. Kevin Buchanan Farragut Family Practice in Knoxville, TN
Dr. Jeffrey Byers, Vanderbilt Clinic in 615-791-7254,  Nashville, TN
Dr. Shack, Director of Plastic Surgery 615-322-2350, Vanderbilt Nashville, TN
Dr. James Gore, Rheumatology 615-764-4450, Vanderbilt Nashville, TN

TEXAS
Dr. Fetchick, Endocrinologist San Antonio, TX
Dr. W.C. Anderson, III MD; dermatologist, New Braunfels, Texas
Dr. Martin Fischer, Rheumatologist, Houston, TX
Dr. Kanani Forney, Texas
Dr. Santamaria in Tomball, Texas
Dr. Caroline Fife at the Texas Med Ctr http://mhhs.woundcenter.net/fife_cv.htm Houston, TX

UTAH
None

VERMONT
Bonita Libman, Burlington, VT

VIRGINIA
Dermatologist Dr Pariser in Norfolk,VA

WASHINGTON
Dr. Christopher Berlin, Group Health, Downtown Seattle, WA

WEST VIRGINIA
None

WISCONSIN
Dr. Elizabeth Bensen, Physiatrist (Pain & Rehab) Fond Du Lac, WI

WYOMING
None

INTERNATIONAL DERCUM'S

Canada
Dr. Scott Walsh of Sunnybrook Hospital, Ontario, Canada
Dr. Pierre Lebel, Montreal, Canada

Europe
Dr. Jönsson, Kjellerup Sygehus Denmark
Dr. White, breast surgeon &  Dr. Adams, plastic surgeon, in London, England
Ms. Ackroyd, cardiovascular consultant at Princess Alexandra Hospital, Harlow Essex UK
Dr A Warin of The Royal Devon & Exeter Hospital Exeter UK
Dr Skilton consultant surgeon of North Staffs, then Dr Daggett Consultant Physician at Stafford General Hospital  UK?
Dr. Sven Söderberg, Luleå-Sweden
Professor Mortimer at Parkside Hospital in Wimbledon. London UK
Dr. Ulrike Meske, Pain Therapist Lörrach, Germany

Australia
Dr. T. Gavaghan Canberra Australia
Dr. Peter Randell, Perth, Western Australia
Dr. Paul Flanigan, Surgeon Geraldton, Western Australia
Redcliffe Hospital Redcliffe Australia

Dr. Ian Holten plastic surgeon Geelong Victoria

Dr. Robert Parkes Launceston Tasmania

Dr. Bianca Perera Launceston Tasmania

Dr. Amanda Young surgeon Launceston Tasmania


 

US LIPEDEMA

Country:  United States

 

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment
Patient Reviews:  Ten years' experience studying and treating fat disorders.

___________________

State:  California

Clinician’s Name: Dr. Emily Iker Type of clinician:  M.D.
Location: Santa Monica, Lymphedema Center  2021 Santa Monica Blvd Suite 620E
Santa Monica, CA 90404
Contact Info: Phone:  310-829-7472  Web:  http://www.lymphedemacenter.com
Services offered:  Diagnosis and treatment
Patient Reviews:  She is fantastic!

___________________

State:  Nevada

Clinician’s Name:  Dr. Eddy H. Luh Type of clinician:  M.D.
Location: Las Vegas Surgical Associates, LLP 8930 West Sunset Road Las Vegas NV, 89148 
Contact Info: Phone:  702-228-8834, 702-258-7788  Web:  http://www.lvsurgical.com
Services offered:  He is a vascular surgeon familiar with lip. He doesn't do the surgery but he can recommend it.
Patient Reviews:  ___________________

State:  New Jersey

Clinician’s Name: Ana Pozzoli, Type of clinician:  PT, CLT-LANA
Location:OmniTherapy Center, LLC,  557 Broad Street, Bloomfield, NJ 07003
Contact Info: Phone: 973-429-0890  Web:  http://www.omnitherapycenters.com Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Services offered:  CDT, physical therapy
Patient Reviews: Ana is an excellent, compassionate therapist with experience treating lipedema and lymphedema.  Her husband Oscar is now a Vodder-trained therapist.

 

Clinician’s Name: Cheryl Muschiatti Type of clinician:  Compression garment fitter
Location: 1350 Galloping Hill Road, Union NJ 07083
Contact Info:  Phone: 908-810-9381  Web: http://www.allcaremedical.net  Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Services offered:  Fitting of custom compression garments for both day and night time; also sells standard size garments
Patient Reviews:  Cheryl is a great fitter; she made me feel comfortable about exposing my legs.  She did not know what lipedema was but was open to learning.  Her measurements were spot on, no tweaks were needed to the garments she got for me.

 

Clinician’s Name: Dr. Kathleen Francis Type of clinician:  P.C.
Location:  Livingston, NJ
Contact Info:  Phone:  973-322-7366
Services offered:  Evaluation, management, and treatment of lymphedema & Lipedema.
Patient Reviews:  I felt Dr. Francis was kind and patient, she answered all of my questions to the best of her ability and was willing to acknowledge when she needed know something.  She specializes in Lymphedema but does treat a few with Lipedema.  She was great to see if you need a diagnosis and prescription for compression stockings.
___________________

State:  New York

Clinician’s Name: St Joseph's Hospital Health Center Type of clinician:  
Location: Fayetteville, New York
Contact Info: Phone:  315 329-7000  Fax: 315- 329-7578
Services offered:  Treatment for Lipedema and Lymphedema 
They order custom wraps, garments that they measure for, pneumatic machines. reid sleeves etc.
Patient Reviews:  they also have an indoor one person pool with the treadmill built in the pool with bars for holding if necessary.

Clinician’s Name:  Kathryn T. Anilowski Type of clinician:  MS, PT, CLT-LANA
Location: Kinder Touch Physical Therapy & Lymphedema Center
One West Avenue, Suite 215  Saratoga Springs, NY  12866 – 6050
Contact Info:   Phone: 518-587-KTPT (5878) Web:  http://www.KTPT.com  Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Services offered:  Lymphedema Treatment using Combined Decongestive Therapy The most effective Lymphedema treatment is known as Combined Decongestive Therapy (CDT). CDT consists of Manual Lymphatic Drainage (MLD), short stretch compression bandaging, therapeutic exercise, skin care and patient education. CDT effectively reduces swelling and helps return the tissues back to their normal size and function. Manual Lymphatic Drainage (MLD). Compression Wrapping, Hygiene & Skin Care, Decongestive Exercises, Risk Reduction Education To aide in the patients continued self-care process.
Patient Reviews:  I highly recommend Kathryn, she is not only incredibly informative for patients, but her drive to ensure more doctors know about these conditions keep her on the road meeting with vascular surgeons and hospitals, etc. to teach & train them on what they are and how to treat them.  She got started in the lymphedema filed when one of her friends had cancer and got lymphedema and could not find any help, so she learned and became a specialist in the field.  I was her first patient in 
Saratoga Springs and she went out of her way to work with me on those early months when I had to visit her daily for MLD and bandaging.  She is personable, became a dear friend of mine and her staff are amazing, too.
___________________

State:  Oregon

Clinician’s Name: Dr Jonathan Purnell Type of clinician:  Endocrinologist 
Location: Portland Oregon  Oregon Health Sciences University
Contact Info: Phone:  503-494-3273  Web:  http://www.ohsu.edu/academic/medicine/divisions/endo/purnell.htm
Services offered:  Diagnosis
Patient Reviews:  Dr Jonathan Purnell was ok mostly for diagnosis. 

___________________

State:  Pennsylvania

Clinician’s Name: Peter Prociuk Type of clinician:  MD
Location: 322 North High Street
West Chester, PA 19380,
Contact Info: Phone: 610-701-5702    Fax:  610-701-4225  http://www.drpeterprociuk.com
Services offered:  monitoring and prescribing to help maintain lipedema patients to be as healthy as possible.  He understands Lipedema very well. His approach is to interview the patient, order alcat tests to see what foods are inflaming, prescribe diet recommendations, and order organic acid tests to see what supplements the patient needs in her particular case. He also writes prescriptions for support hose, physical therapy and flexi touch machine. He prescribes homeopathic remedies in order to help the patients overall health ..including mental health. 
Patient Reviews:  Dr. Prociuk also does Skype consultation so people don't necessarily have to come directly to visit him. Since I only live about 10 minutes from his office, if anybody is visiting him I would love to meet them When they are in the area! 

He is amazing. Brilliant clinician who treats the whole person ...including emotionally. He is holistic and very health conscious. He has a special interest and expertise in treating autism as well. It is important for patients to be proactive with him, as he won't  order tests or let the patient incur additional expense unless the patient asks for them. I have been seeing him for over ten years.

___________________

INTERNATIONAL LIPEDEMA

Country:  UK

City:  Stockton on Tees

Clinician’s Name: Pam de Chaumont Rambert at Dales Therapy Type of clinician:  MLD Therapist
Location:  31 White House Croft, Long Newton.  TS21 1PJ
Contact Info: 01642 583530 This email address is being protected from spambots. You need JavaScript enabled to view it. .uk
Services offered:  Manual Lymph Drainage, Decongestive Lymphatic Therapy, Deep Oscillation, Kinesio-taping, Aromatherapy, Bowen, Low-Level Laser Therapy
Patient Reviews:  Pam is a thorough professional coming from a nursing background. She has a very caring and understanding manner and looks to provide a response geared to the clinical needs of her patient. I would absolutely recommend her.

___________________

 

MADELUNG's

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment
Patient Reviews:  Ten years' experience studying and treating fat disorders.

___________________

FML

State:  Arizona

Clinician’s Name: Dr. Karen Herbst Type of clinician: Endocrinologist
Location:University of Arizona, Tucson, AZ
Contact Info: Phone: 520-694-8888  Web:  http://www.lipomadoc.org/
Services offered:  Diagnosis and treatment
Patient Reviews:  Ten years' experience studying and treating fat disorders.