Living with Lipedema and Dealing with Dercum's

The FDRS 2016 Conference: Living with Lipedema and Dealing with Dercum's will be April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, MO. Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include surgical and non-surgical treatment options in managing both Lipedema and Dercum's Disease.

Conference Agenda: Click here for Preliminary Schedule

Conference Sponsors and Vendors: Click here  

Conference Registration & Dates 

The conference will run from 5:00pm on Friday, April 8th through 12:30pm on Sunday, April 10th. Keep in mind that many people will arrive early or stay late in order to make new friends or visit with old ones.

Hotel Information & Booking Link

Marriott St. Louis Airport

10700 Pear Tree Lane

St Louis, MO 63134

Book your group rate for Fat Disorders Research Society The room block is sold out but rooms are available at market price.


**The Conference is fast approaching and we are excited to see you all. We know that many of you have some questions so we are hoping the info below will help make the trip as pleasant for you as possible!


Join the FDRS 2016 Conference Facebook group. It is a closed group so it is private. All last-minute communication will be handled through this page, like how to find the check-in table! This is the best way to get a hold of us and others at the conference. If that doesn't work, email us at This email address is being protected from spambots. You need JavaScript enabled to view it.


Rooms: If you would like a handicap accessible room or other accommodations, please call 800-228-9290 and mention group code FDRS or Fat Disorders Research.

Conference chairs: The stated capacity of the chairs is 250lbs and the seat dimensions are 16x16", however, the chairs can be hooked together. Due to liability we cannot coordinate hooking chairs together. Please contact the hotel to arrange for those chairs AND email us at This email address is being protected from spambots. You need JavaScript enabled to view it.  so we can double check that the room setup is okay.

Airport to hotel transit

There is an airport-hotel shuttle. To catch the shuttle, go to the lower level baggage claim. If you are arriving in Terminal 1 proceed to exit 18. If you are arriving in Terminal 2 proceed to exit 15. Buses run every 20 minutes. If you require a shuttle with a wheelchair lift, please contact the hotel directly at 314-423-9700 at least 15 minutes in advance to request a handicap-enabled shuttle, and provide your arrival time and airline.

What to pack

- People with fat disorders: We will be taking professional photographs of all the disorders in order to clearly illustrate the disorders in research papers, the FDRS website, the UA TREAT program website and the Lipedema Foundation. PLEASE bring a conservative, plain, all-black bra, boy shorts or mens underwear, as appropriate, in your suitcase if you would ever possibly consider getting photographed (with or without your head showing!). Dr. Herbst, the FDRS team and the Lipedema Foundation will be forever grateful to have high-quality photos to educate physicians, researchers and the world with.

-  Friday night will be fun and relaxing, so you’re welcome to dress up a bit if it suits you, but you’re also welcome to not dress up

- Saturday & Sunday dress for comfort

- Sweater in case the conference room is cold

- Swimsuit & swim gear if you want to hit the pool and get the lymph flowing

- Business cards, if you have them, for networking

- Bags, pens and notebooks will be provided, so no need to pack those

- No special clothing or yoga mats are needed for the  yoga sessions.  Please come dressed in what you plan to wear for the day!


We have a great agenda planned but it is a very tight time schedule.  Please note the start times for each speaker so you can be sure you don't miss a thing!  AGENDA

Meals & Food

Registration includes a light reception on Friday evening, breakfast on Saturday, lunch on Saturday, and breakfast Sunday. Details regarding the meals will be posted closer to the conference. In order to keep costs down, beverages will include water, iced tea, hot tea and coffee.

The hotel has a restaurant, bar, snack shop, Starbucks, room service and vending machines. The restaurant is open for breakfast 6am-11am, lunch 11am-2pm and dinner 5pm-10pm. The bar is open 2pm-1am and serves lunch and dinner. The coffee/snack shop off the lobby is open from 5am-11pm. Starbucks is open from 5am–10pm. Room Service is offered 6am-11pm.


We will be filming the speakers throughout the conference so choose your seat with that in mind


Photographing real women with lipedema is important to our cause and we need your help. We will have a professional photographer at the conference to get some photos which will be used in research papers and in our marketing materials. If you think you might be interested in being photographed, whatever stage you are, please bring with you a solid black bra. The photo shoot is at no cost to anyone who participates. Please let us know if you are interested.

St. Louis Info

The hotel had a guide of things to do here: . To get around, you can take the hotel shuttle to the airport, and take the Metrolink around town, or take taxis. Some locals have cautioned against using the Metrolink near the airport at night so please be aware at all times.


We do not have a full list of service providers, but if you have a physician order form and want a physical therapist appointment while in town, you may want to call SSM Physical Therapy at 618-281-6681 or email This email address is being protected from spambots. You need JavaScript enabled to view it.


These meetings are open to all who are interested in Lipedema and Dercum's Disease. All attendees must pay to register. Unfortunately, we cannot allow children at the event.

Sponsors, Vendors and Contributors

There are many people who have made this conference possible, so please thank and support our Sponsors, Vendors & Fashion Show Contributors!

Pre-conference survey

Please complete the pre-conference survey if you have not done so already

Get to Know Us!

Want to get involved but not sure how? FDRS is looking for some extra hands for the day-of activities. It's a great excuse to get involved and be part of a great event!

If you get into town early, we’ll be meeting Thurs and Fri to stuff attendee bags - join us if you want! Post a message on the FDRS 2016 Conference group to find us!

Tweet the conference using the handle @Fat_Disorders and hashtag #FDRS2016

Join our Maillist

Like our Facebook page 

Subscribe to our YouTube Channel to get notified when we post new videos 

FDRS is looking for more team members, so please come get to know us!  Click Here to download our Volunteer Form. Please fill it out and email it back to us at This email address is being protected from spambots. You need JavaScript enabled to view it. .

Vendor Inquiries

Click here for vendor opportunities.



Can I bring a friend/spouse/family member?

Absolutely!  This meeting is open to all who are interested in Lipedema and Dercum's Disease. All attendees must pay to register.  

What are my transportation/parking options getting to the event?

The hotel offers a complimentary handicap accessible shuttle from the airport. Parking for guests is $10/day. Parking for non-guests is $15 for 12-24 hours. Check the Marriott's website for up to date pricing.

Where can I contact the organizer with any questions?

This email address is being protected from spambots. You need JavaScript enabled to view it.

Can I pay by check?

Yes, please make your check payable to FDRS. Checks must be received by December 31, 2015 to receive the early bird discount. Mail to:


P.O. Box 3014

Ridgefield,‎ NJ‎ 07657

Do I have to bring my printed ticket to the event?

No need to bring a printed ticket if you have ID. We will have your registration information. However, we do suggest you print a copy for your records.  

What is the refund policy?

Ticket sales are nonrefundable.    

Can I record the conference?

The conference will be professionally videotaped and be available at no charge for conference attendees.  As such, no video or audio taping (including but not limited to phones, video cameras, or any other recording devices) is permitted during the conference.

What if the registration fee is out of my budget?

FDRS does not want financial hardship to keep anyone from attending our annual conference. As such, we are pleased to announce a limited number of financial hardship scholarships to offset registration fees for the 2016 FDRS conference in St. Louis, Missouri. To apply, please complete the following document: Financial Hardship Application and e-mail the completed application to This email address is being protected from spambots. You need JavaScript enabled to view it. .  The application is designed to complete electronically, save to your computer, and attach it to an e-mail. THE DEADLINE TO APPLY HAS PASSED.

CME for Physicians, Physician Assistants, and Nurse Practitioners Only

Living with Lipedema and Dealing with Dercum’s Disease
April 8-10, 2016
St. Louis, MO

Method Of Participation
Upon completion of this course, the Academy for Continued Healthcare Learning (ACHL) will provide you a 7 digit code. You will enter that code on the ACHL website, complete the course evaluation, and your certificate will be available for you to print or save immediately. Inquiries may be directed to ACHL at (877) 444-8435, ext. 160.

Accreditation Statement
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Academy for Continued Healthcare Learning (ACHL) and the Fat Disorders Research Society (FDRS). The Academy for Continued Healthcare Learning is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation
The Academy for Continued Healthcare Learning designates this live activity for a maximum of 11.50 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Faculty Disclosures
The Academy for Continued Healthcare Learning (ACHL) requires that the faculty participating in a CME/CE activity disclose any relevant affiliation or other financial relationship (1) with the manufacturers of any commercial product(s) and/or provider(s) of commercial services discussed in an educational presentation. Conflict resolution must occur prior to the CME/CE activity. The ACHL also requires participating faculty to disclose when unapproved/unlabeled uses of a product are discussed in a CME/CE activity.

The following financial relationships have been provided:
Karen Herbst, PhD, MD
Grants/Research Support:  Lipedema Foundation
Karen Beltran
Grants/Research Support:  WAESO- Western Alliance to Expand Student Opportunities
Eva Sevick-Muraca, PhD
Shareholder: NIRF Imaging
Grants/Research Support: Kimberly Clarke and Tactile Medical
Yvonne Russell, RN, CLT
Board Member: Fat Disorders Research Society
Owner: Lipedema Products 

The remaining faculty and planners have no relevant affiliations or financial relationships to disclose.
Staff and Reviewer Disclosures
ACHL staff members and others involved with the planning, development, and review of the content for this activity have no relevant affiliations or financial relationships to disclose.
Sponsored by The Academy for Continued Healthcare Learning

Target Audience
Physicians, physician assistants, nurse practitioners, researchers, and therapists, who treat patients with lipedema and Dercum’s disease. Patients and care takers will also benefit from this meeting.

At the conclusion of this activity, participants should be able to:

1. Differentiate patients with lymphedema, obesity and venous disease from patients with lipedema and Dercum’s disease
2. Assess the type of Dercum’s disease that a Dercum’s patient presents with (Type I, II or III)
3. Assess the stage of a patient with lipedema
4. Select recommended conservative and/or surgical treatments for patients with fat disorders
5. Discuss the quality-of-life impact that living with Dercum’s disease or Lipedema has on patients