Friday, April 12

4:00 - 6:00 pm Registration, Vendor Mixer and Welcome Reception

6:00-7:30 pm Opening Ceremonies

Saturday, April 13

7:00 – 8:00 Breakfast and Vendor Time

8:00 – 8:40 Keynote Address: Why Doesn't My Treatment Work For My Fat?: Karen Herbst, MD, PhD

8:40 – 9:00 Break

9:00 – 9:20 The Clinical Examination of Lipedema: John “Jerry” Bartholomew, MD

9:20 – 9:40 Chronic Venous Disease - When Treatments May Help: Lindy McHutchison, MD, ABOG, ABVLM

9:40: 10:00 TBA: Steven Dean, DO

10:00 – 10:20 Break

10:20 – 11:30 Research Update:

  • Landscape of Lipedema Clinical Research: Erik Lontok, PhD

  • Whole Body Water Distribution In Lipedema And Dercums Disease: Rachelle Crescenzi, PhD

  • Washington University Lipedema Study Update: Thomas F. Wright, MD FACP FACPh RVT

  • Head, Shoulders, Knees And Toes: Whole Body Imaging Of Lipedema: Rachelle Crescenzi, PhD

  • Genetic Basis Of Lipedema And Physiological Insight: Yann Klimentidis, PhD

  • Lipedema Manifestation and Hormonal Alterations: Is Estrogen Contributing to Pathophysiology?: Michelle T. Foster, PhD

11:30 – 11:45 Group Photo

11:45 – 12:45 Lunch and Vendor Time

12:45 – 1:15 Defining Dercum Disease: Karen Herbst, MD, PhD

1:15 – 1:45 Overview of the Ehlers-Danlos Syndromes and Lipedema: Clair Francomano, MD

1:45– 2:05 Break

2:05 – 2:30 Breakout Session: Insights from Personal Nutrition Research: Chuck Ehrlich

2:05 - 2:55 Breakout Session: Clinician to Clinician

  • Lipedema: From Diagnosis to Management: Emily Iker, M.D

  • Roundtable discussion

2:30 – 2:55 Breakout Session: Integrative Methods Of Pain Management For The Fat Disorder Patient: Linda-Anne Kahn, CLT-LANA NCBTMB CDT

3:00 – 3:20 Break

3:20 – 3:45 Breakout Session: News You Can Use: Physical Therapy Treatment Interventions For Fat Disorders: Paula M. Donahue, PT, DPT, CLT-LANA, MBA

3:20 - 4:10 Breakout Session: Clinician to Clinician: Hot Topics

  • Diagnosis and Management of Complex Case: Emily Iker, M.D

  • Nutrigenomics and Individualized Treatment Strategies for Lipedema Patients: Oscar Coetzee, D.C.N. and Brianna Manginelli

3:45 – 4:10 Breakout Session: Take Your Time: A Graded Approach To Treating Fat Disorders: Maureen McBeth, PT, MPT, CLT-LANA

4:10 – 4:30 Break

4:30 – 6:00 Liposuction for Lipedema and Dercum’s Disease:

  • Treating Another Pain: Challenging Insurance Denials For Denied Lipectomies: Joseph Gavin, J.D.

  • Combining Skin Excision with Liposuction for Lipedema: Brachioplasty, Thighplasty, Abdominoplasty: Michael S. Schwartz, M.D., APC

  • Fibrosis And Lipedema What You Need To Know: David Amron, MD

  • Lipedema and Lymphedema: Jay Granzow, MD

  • Q&A

4:30 - 5:30 Breakout Session: Roundtable Discussion for Family/Friends:  Preventing Caregiver Burnout:  Chuck Ehrlich

Sunday, April 14

7:00 - 8:00 Breakfast and Vendor Time

8:00 - 9:00 Breakout Session: Patient Journeys: What Worked for Me (May or May Not Work for You)

  • Viking Winter Diet--Treating Obesity and Autoimmune Diseases Through Vitamin-A Elimination: Arlene L. Nelson, MSN, APRN

  • How I Lost Over 6 Dress Sizes Without Surgery: Cheryl M. Scoledge

  • How Low Can You Go?Success with Lipedema on a Zerocarb Carnivore Ketogenic Diet:Gillian Szollos

8:00 - 9:00 Breakout Session: For Therapists:

  • Clinical Skills We Can Use: Lymphatic Decongestion Treatment Interventions: Paula M. Donahue, PT, DPT, CLT-LANA, MBA

  • Roundtable Discussion

9:00 – 9:20 Break

9:20 – 10:00 Patient Perspectives:

  • Defying Dercum's: Susan Mortarelli

  • Living with Stage 3/4 Lipedema: TBA

10:00 – 10:20 How to Form a Local Support Group: John “Jerry” Bartholomew, MD

10:20 – 10:40 Break

10:40 – 11:30 Obtaining Disability: TBA

11:30 – 12:00 Stress Reduction for Lipedema and Dercum’s Disease Patients: Kathleen H. Lisson, MT, CLT

12:00 – 12:15 Closing Ceremonies


The speakers are representing themselves in their personal capacity. Their views are their own and do not necessarily represent the views of FDRS.

Notice to patients: This conference and the related materials are provided solely to educate consumers on health care and medical issues that may affect their daily lives. Nothing in the Content should be considered, or used as a substitute for, medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Reliance on the Content or any portion thereof is solely at your own risk.